stenchmiester
10-30-2011, 05:59 PM
Well here is a donation site my fiance and I were able too setup. Also a few members have been figuring out fundraisers and I can't express hope much it means too my family and I
http://m.facebook.com/l.php?u=http%3A%2F%2Fwww.giveforward.com%2Fhelpbab ybrooklynnbeatalexanderdisease&h=wAQFIurnT&refid=52&ref=m_notif
well i am asking for everyones prayers my youngest daughter brooklynn will be 2years old next month and has had serious medical issues in her life. she has now been diagnosed with alexanders disease which is extrememely fatal. she had her first onset at 6 months old and they are not projecting her life span to be more than her 4th birthday. since 1948 they have only discovered 500 cases of the disease there is no cure or way to slow it down. i ask for all of you to keep her in your heart and pray that she makes it through this. i am going to be setting up some sort of benefits so we can afford to take her on vacations. if you want to read into more here is some info thank you all and god bless http://en.wikipedia.org/wiki/Alexander_disease
http://m.facebook.com/l.php?u=http%3A%2F%2Fwww.giveforward.com%2Fhelpbab ybrooklynnbeatalexanderdisease&h=wAQFIurnT&refid=52&ref=m_notif
well i am asking for everyones prayers my youngest daughter brooklynn will be 2years old next month and has had serious medical issues in her life. she has now been diagnosed with alexanders disease which is extrememely fatal. she had her first onset at 6 months old and they are not projecting her life span to be more than her 4th birthday. since 1948 they have only discovered 500 cases of the disease there is no cure or way to slow it down. i ask for all of you to keep her in your heart and pray that she makes it through this. i am going to be setting up some sort of benefits so we can afford to take her on vacations. if you want to read into more here is some info thank you all and god bless http://en.wikipedia.org/wiki/Alexander_disease